Sam was a wonderful mum and friend. Whilst I mostly knew her virtually, we did meet at a conference. Sam was a huge inspiration for me in her drive for teaching Andrew to read and in everything she did to support him. She supported me until the early hours of the morning by text when I stayed by my sons beside in hospital desperate with worry. The unique thing is that I am a trustee there to support our families, but Sam supported me. I’m truly gutted she’s left us. But her legacy will live on and her drive and determination I am sure is shared in both her boys. Our boys are only 15 days apart by birthday and were diagnosed the same year. I don’t think I can ever have that connection of understanding in the same timeframe with anyone but Sam. Sam I will miss you so much. I’m just sorry we didn’t get more time together as families and friends.